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This article was written by Pete Lomas (T1D) and medically reviewed by Rachael Baker, BNg, CDE, MNgPrac
Last updated on 01/02/24.
Have you ever heard of the ideas “Loop in diabetes” or “DIY Looping” ? ‘I’m not a “Looper” but I am super proud that our T1D community has individuals smart, brave and ingenious enough to be pushing the boundaries of medical technology to make their lives and their diabetes more manageable. I think it’s so cool that this community exists to support each other with very little vested interest other than helping out a Diabuddy!
#wearenotwaiting is the mantra and it pretty much says it all.
This Looping community is not waiting for the powers that be to commercialize and regulate technology that helps them create closed loop systems/algorithms that use CGM data to message insulin pumps and deliver insulin without the need for manual CGM data entry.
Looping originated when Dana Lewis stumbled upon a tweet from John Costik about his ability to access his son’s CGM data remotely. John shared his code enabling Dana to upload her CGM data to the cloud. Throw Ben West in the mix, who had reverse engineered insulin pump communication protocols and you have CGM data algorithms that predict glucose levels and the ability to leverage this data to influence insulin pump activity.
So on a looping system, the collection of CGM data, previous insulin dosing, food intake and blood glucose values allows insulin dosing commands to the pump to regulate insulin dosing and bring glucose levels back in range.
The closest commercialized looping option is the Medtronic 670G “hybrid closed loop” system which automates basal insulin but still requires button pressing and bolusing for carbohydrate consumption.
This one is a little more tricky and there isn’t much out in the ether about building your own closed loop system, unless you want to convert your Freestyle Libre, which is technically a flash monitor as opposed to a continuous monitor (CGM). There are three options on the market to convert the Libre into a ‘continuous’ monitor. The Ambrosia NightRider, the MiaoMiao and the Bubble. These Libre attachments facilitate continuous messaging effectively enabling you to build your own CGM.
Currently Dexcom G4, G5, G6, xDrip+ and Medtronic CGM’s can be part of the lopping set up and Omnipod insulin pump is also being ‘hacked’ by loopers now. Insulet has promised to bring a closed loop system to the market with Omnipod 5. Their CEO (Shacey Petrovic) has even acknowledged the Looping community, which is a milestone of sorts as to date “industry” have tried to ignore looping and hope it goes away. Stacey’s acknowledgement is smart on her behalf and looping is here and the community are highly engaged and pretending looping will go away is hoping to ignore a key element of the diabetes community.
There seems to be less information in the ether about Freestyle Libre and its role in a looping set up. This fits somewhat with the marketing of the Libre which is more mass market designed as opposed to niche specialized T1D specific. This has been a key differentiator with the way Abbott have taken Libre to market and expanded indications to T2D and the fitness market. CGM’s don’t just belong to people with diabetes anymore and Abbott are at the forefront of opening this up.
Loopers observe improved time in range and decreased A1c. Some caution is recommended with the real world data that underpins any looping results as we don’t yet have any randomized controlled data.
Aside from the observed clinical outcomes, loopers have also observed improved sleep quality and general quality of life improvements.
The risks with looping are the DIY nature and lack of regulatory control that can result in patient safety. Looping is ‘experimental’ and this brings inherent risks as outlined by Diabetes Australia. DA does not endorse DIY / Looping per se but does acknowledge the gap between approved technology and a market need.
Personal responsibility is the winner here. In a world increasingly restricted by regulations and the ever increasing reduction in personal responsibility by laws and regulations , I am wholeheartedly in favor of the looping community and the #wearenotwaiting movement. Know the risks, do your research and decide for yourself if you have the tech savviness and the wherewithal to become a looper. There’s plenty of support online and the looping community is one you can rely on for support.
About Rachel Baker, BNg, CDE, MNgPrac
Rachael Baker is a leading Nurse Practitioner Credentialed Diabetes Educator (CDE) in Brisbane and is passionate about staying up to date with Diabetes Technology and optimising these tools to be implemented in a way that is helpful and practical for people living with Diabetes. Using a holistic approach, Rachael focuses on self-empowerment for individuals living with Diabetes and supports them to live a life without limits.
About Pete Lomas, T1D
Pete is the CEO and Founder of a diabetes technology start-up called Balance Health and the CEO of Not Just a Patch. As a person with T1D himself, he sees the opportunity in improving patient experiences via technology, product and brands. He is driven to make a difference in the lives of people with diabetes via design driven products and solutions.
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